Cleaning up some old email and found a link to these COVID-related resources provided by HCAARDD. from a virtual course offered early in 2021. Some, but not all, over COVID-specific. Includes supports for self-advocacy. They also offer a "Family Matters Toolkit" and a information that can be shared with healthcare providers. [2022/11/13[
Additiona COVID-related resources:
- HELP during COVID-19: Thoughts about Spporting Mental Health
- CAMH FAQ and Resources
- picture stories and guides to support individuals
- for caregivers: self-care during COVID-19
- staying connected during COVID
- online programming ideas
- connecting with other families
- my COVID Checkin tool
- Steffi Explains It Clearly
- HCAARD COVID page
Awake Labs purports to have wearable technology to help caregivers (and individuals themselves) monitor stress levels in people with developmental disabilities.
Apparently the University of Toronto's School of Dentistry provides emergency dental care for those who pay an annual membership.
CAMH runs "Project ECHO" with a focus on mental health issues for adults with intellectual and developmental disabilities. It appears to be targeted to professionals, but it's not clear if they would explicitly exclude parents/caregivers. At a minimum it might be a useful resource to share with the service providers in your child's life. [2022/10/06]
About my Health: a worksheet for people with intellectual and developmental disabilities to fill out and share with health care providers to make the health care visit a success.
Resource for bereavement:
- Talking End of Life
- Let's Talk about Death, Dying, and Coronavirus video
- Supporting People with Learning Disability in Bereavement webinar recording
Resources for informed decision-making:
- Decision Making in Health Care of Adults with Intellectual and Developmental Disabilities
- Advance Care Planning
