Saturday, 6 November 2021

5 Things My Son Learned to Do After Age 21

If college/university isn't an option, it sometimes seems like everyone assumes that after age 21, there's nothing much our kids can really learn, at least not if they have significant cognitive challenges. Here's a list of 5 things my kid has learned since leaving school: they might not sound big to some people, but I'm kinda proud of them.

(1) How to take pills. Leaving aside the bad old days of a serious seizure disorder where he was on liquid medications, my kid is pretty darned healthy. He tends to have only two modes: perfectly well and too sick to get out of bed. However, being able to take pills is a pretty basic life skill, so I figured I better get around to it. We started, as people do with small kids, with small candies, and then moved to a multi-vitamin. It was surprisingly difficult to find out how big a particular multi-vitamin might be, since they all come in opaque cases, but with a little help from the people at Noah's, we bought a bottle of Platinum Naturals Easymulti multivitamins. They are gel pills, and quite narrow (though long). We added a regiment of taking them at breakfast, and picked up a cool pill dispenser at the dollar store that helps him keep track of whether or not he has taken it (like the one below, but with day names on the compartments). Now I feel a little better knowing that if he's prescribed an actual medication he will at least know how to swallow it. 


(2) How to use a Presto card.
(3) How to ride in a WheelTrans vehicle (typically a cab) with different drivers and often different co-riders.
(4) How to wear sunglasses. One of his program gave some out to thank people for their volunteer work, and he absolutely loved them (he wears them over his regular glasses) and always checks the weather to see if he should wear them. (I got the eye doctor to check them out and make sure they were safe.) He looks just a little goofy in them, but who am I to judge? We keep our eye out for this particular model everywhere we go, in case he loses them, which would be a major issue.
(5) How to use a debit card: a skill that became particularly useful when the pandemic hit!
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Workshops, peer groups, programs and resources for caregivers

Support Workers

Care.com claims to be able to provide support workers for a variety of needs. Given that respiteservices.com is very limited these days, this might be an alternative.

Healthcare Resources

Family Matters Toolkit
From HCARDD (Health Care Access Research and Developmental Disabilities) - This toolkit is for caregivers who are interested in improving the health and health care of a family member with intellectual and developmental disabilities.

About My Health - "a worksheet for people with intellectual and developmental disabilities to fill out and share with health care providers to make the health care visit a success"

Peer Support

Safe and Secure Futures Network meets on Tuesday evenings. Based in Toronto. "Safe and Secure Futures is attended by parents and loved ones who have a family member with a developmental disability. Themes around creating a Good Life, with Real Friends, Real Work, Real Home, Real Opportunities, and Creating Support Circles around us, and our family members… are all discussed + explored here. It’s a safe space to share, learn, support one another, and grow." 
RSVP to ssfne@extendafamily.ca.

There's a private Facebook page, started by Bonnie Heath of Scarborough Residential Alternatives, for parents of children (of any age) with a developmental delay who are "looking for support and guidance from various family networks". [added Apr 2022]

Workshops/Training

Ontario Independent Facilitation Network

  • The Power of Leisure Identities & Valued Social Roles, December 7 and 9 10 - 3 EST
  • The Power of Possibility: Who I Am and Why I Do What I Do, January 18 and 19 10 - 3 EST
  • Conscious Learning and Speaking, March 1 and 3, 10 - 3 EST

registration link ($150 per course, $400 for all)

Caregiving Essentials course offered any time between Oct 12, 2021 and July 8, 2022, ends August 8, 2022, free, self-paced, learning.

Planning for a Good Life

Safe and Secure: Seven Steps on the Path to a Good Life for People with a Disability

Organizations

HAND Housing Alternatives Network Directive - this link is to the Halton CLT website, there may be groups in other regions as well

www.oifn.ca  - Ontario Independent Facilitation Network is where you can find information about facilitation, what to ask when choosing a facilitator, and some stories of how families have used a facilitator effectively

Facilitation Leadership Group - provides training and consulting for facilitators

Financial

latest info about support worker temporary wage increase

Mental Health Resources

https://self-compassion.org/

https://familydoctor.org/talking-to-your-doctor-about-your-mental-health/

https://www.compassionincaregiving.com/ - a mental health service provider for caregivers (fees involved)

McMaster University has a free "Caregiving Essentials" program and a newsletter you can subscribe to